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  1. #1
    Nea


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    How get effective adult ADHD treatment in Germany with history of rare seizures

    TLDR; Psychiatrist won't prescribe medications I need because I had a hypoglycaemic seizure and they won't risk it being epilepsy. What to do?

    Apologies for writing this in English. I am from outside of Europe and my German is still not good enough that it works well enough for me to write in. I would like to explain my situation, and ask if anyone has had similar experiences and could offer any advice on how they were able to resolve it?

    My main problem is ADHD - as a teen, handling my daily life and rhythm with school, work, social life etc. was always super chaotic and stressful because of how easily my mind wanders and how hard it is for me to build and keep habits. After moving (before coming here) and signing up with a new psych, she prescribed me (Metylphenidat) and it really helped super well - all those problems quickly became possible to handle, and it has stayed that way since for five years. When I moved to Germany last year to take up a job (which will have me here for another 3-4 years at least), I had somehow assumed it would be no problem to get the same treatment while here, because I could see my medication was also being prescribed and sold in Germany. Unfortunately, it seems like I was at least partly wrong.

    I also have some other problems – I sometimes get hypoglycaemic after long days or long nights, in which case I sometimes have mild seizures. This happened a while ago while visiting a friend, and since they didn't know what it was, they called an ER team which took me in for observation, after which as usual I was fine again after an hour or so.

    Unfortunately, from her description of the symptoms (blackout, shaking, unresponsive etc.) the ER doctor interpreted this as an epileptic episode, despite the fact I have no history like that and that similar things can and do happen at low blood sugar, both for me and for others I know. So in my medical record now, it was listed as one, and so when later that month I talked to the German neurologist I had been remitted to in order to get an ADHD diagnosis and a prescription for my medication, the neurologist told me that since I have any history whatsoever of anything epilepsy-like, no German physician would ever prescribe me any stimulant-type medication, even if I meet all the requirements for an ADHD diagnosis.

    This really hit me hard and got me quite depressed for a while, because I really want to stay here for the job I got, but I also know I won't be able to keep focus enough to hold it down unless I am medicated. I tried for many years without it, and I know from how I respond to it that I need proper medication to be able to function something like a normal person. I realize of course doctors can get sued unless they follow all the rules, but from my home country I know several people who have real, bona fide epilepsy and still are prescribed Ritalin or Adderall for their ADHD as a matter of course. And I am pretty sure (also from talking with my GP) that I don't actually have epilepsy per se.

    Hence this post. Has anyone experienced anything like this? Either problems (neurologist refusing to prescribe effective medication despite clear ADHD because of history of seizures), no problems (neurologist prescribing it despite such history, which I could then tell my neurologist about), or solutions (ways in which you got the meds you needed for your ADHD even though you initially were told you couldn't becase of perceived seizure risk)? Any experience or advice would be welcome!

    I am in the Rhein-Main area but travel a lot for work, so in principle I suppose I could find a neurologist elsewhere (though it feels weird to go "doctor shopping") if there are those who don't share the ideas of the one I went to. Again, I know I need some sort of medication like this to function, I tried all sorts of therapies and training and while they helped, I could never keep them up unless when I was medicated. I'm not going to go looking for sordid black-market vendors for the meds I need (and smuggling illicit substances myself is really not an option), but in the worst case I may actually have to move back home rather than face the very real risk of health issues spiralling out of control when I am too unfocussed to see to them the way I need to. Again, any advice helps, specific or general!


    Best wishes,

    Nea

  2. #2
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    AW: How get effective adult ADHD treatment in Germany with history of rare seizu

    Hello, I can give you that recommendation:

    Gemeinschaftspraxis Oehler | Klein | Kreienkamp

    the Doctors there are Psychiatrist as well as Neurologists, the have long-year experience in treating adhd with medication, also combined with neurological disorders. I myself am in treatment there and the doctors there are capable professionally as well as in human interaction. They are renowned for adhd-treatment across southern Germany.

    Some other institution i can really recommend, is the this:

    Prof. Dr. Andreas Reif - Goethe-Universität

    Prof. Reif is a well renowned adhd-scientist who recently became head of department of psychiatry of univerity clincs in Frankfurt am Main. The adhd-ambulance in University clinics Frankfurt is headed by Prof. Reif and physiscians he brought with him from Würzburg. I know some of these doctors in Frankfurt and can recommend them regarding their professional capabilities as well as their social kindness.

  3. #3
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    AW: How get effective adult ADHD treatment in Germany with history of rare seizu

    plus: I doubt that with hypoglycaemic seizures you cannot be prescribed methylphenidate...find the right capable doctor and you will be given help.

  4. #4
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    AW: How get effective adult ADHD treatment in Germany with history of rare seizu

    plus: As the time to get a visit at the institutions wihich I posted is realtively long (up to two month) I give you a third one:

    google allgemeinmediziner Ludwigsburg-Pflugfelden , the one I mean is Th. W. , he is a general practitioner, but he is allowed exceptionally as a general practitioner to perscribe methylphenidate. If he doesn´t feel comfortable as a non-Neurologist to perscribe methylphenidate to you with a background of rare seizures he will definitely find you an institution for instance Neurologist) where you will be perscribed methylphenidate. The adavantage of Th. W. is that the time to get a visit there is much less than for the already mentioned institutions. Maybe a week or days only. He is himself an adhd-person and has got a long-year history of treating adhd, he also took part in a study which resulted in the admittance of Ritalin adult to adult adhd persons, so he is an expert as well. The full name is according to the rules of this forum not allowed due to judicial reasons, as Th. W. has not simultanously a homepage.

    Plus: Ludwigsburg-Pflugfelden is 10km north of Stuttgart. Via Intercity express it can be reached very quickly
    Geändert von Eric Cartman (12.06.2015 um 18:48 Uhr)

  5. #5
    Nea


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    AW: How get effective adult ADHD treatment in Germany with history of rare seizu

    Eric Cartman: Thanks so much for these suggestions!

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Thema: How get effective adult ADHD treatment in Germany with history of rare seizures im Forum ADHS Erwachsene Medikamente bei ADHS bei Erwachsenen Forum
Fragen, Antworten und Hilfe rund um ADS / ADHS - Medikamente, wie Ritalin, Concerta, Medikinet, Equasym und Strattera, sowie Medikamente bei Komorbiditäten, wie Antidepressiva, Neuroleptika, Benzodiazepine, andere Psychopharmaka und sonstige Medikamente
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